Injured patients who want to help and be heard,
click here.
Thomas Jefferson said that given the choice between
government without newspapers and newspapers without government, he would choose
newspapers.
In medicine we have government without newspapers. Patients
cannot find out what they need to know to make informed choices. No one in
medicine records or reports the information patients need to know the most. So
patients will have to do it.
Benjamin Rush
He still should be regarded
as The Father of American Medicine
He was one of the founding fathers of the United States of America.
His signature is on the Declaration of Independence, right above Benjamin
Franklin's. He was the most prominent physician in the country. He was as prominent as George Washington and Thomas Jefferson
and
was called the “Father of American Medicine” and the “Father of American Psychiatry.”
Since he was the first to advance the idea of free public schools, he also was
called "The Father of Public Schools Under the Constitution.” And he was
a pioneer in women’s education. What could there be to criticize?
Click to Enlarge
He is the reason that there still are no safeguards on quality and no market
pressure on costs in medicine. A patient did epidemiological research on Rush's
practice and determined that he did more harm than good. That could have been
the beginning of patients being able to have access to the kind of information
necessary to make informed, intelligent decisions about health care. But Rush
put a stop to it.
Dr. Rush was supremely confident of his own opinions and decisions
even though he was shallow and unscientific in practice. He thought nearly all ailments could
be cured by bloodletting, and made a great deal of money with that and mercury
purging, two practices that nearly every doctor at that time knew was bad
medicine. The field had moved beyond that. Yet none of the learned doctors who knew better warned patients
about Dr. Rush. Even today no one in medicine warns patients about dangerous
practitioners.
Thomas Jefferson visited a sick friend and wrote, ""When I visited him I saw that they were
killing him by bleeding and mercury. . . " Jefferson
could see it. Most patients cannot. Most patients believe doctors. Even
George Washington let followers of Dr. Rush bleed him until he died.
During a fever outbreak Rush claimed to have healed 99 out of
100 patients. Health care professionals still evaluate their own practices
in exactly the same way that Rush did. For instance, no one checks the success rate
of surgeons. Surgeons file their own reports and make up their own
data claiming their practices are nearly perfect, just as Rush did.
Politics and prestige
instead of safety
still rules
An English pamphleteer named William Cobbett, in "Peter Porcupine's Gazette," constructed tables,
from publicly available data, that elucidated the increase in mortality in September after the “Pennsylvanian Hippocrates,” as he called Rush,
practiced bloodletting there. Other critics
backed up his findings with similar tables.
That could have been the beginning of the field of patient safety, if
Rush had not begun the tradition that prevents people to this day from
understanding, judging and analyzing
their health care. Rush sued Cobbett into silence.
Rush had announced that his practice had conquered the
epidemic. Cobbett asked Rush to produce a list of patients he had healed. Rush
said he had not had time to make a list. Cobbett knew that three of Rush's
apprentices had died
from the fever and that Rush's own daughter had died from it. So Cobbett quipped
in print that even though most of Rush's apprentices had died from it, surely enough had
survived to make a list. So Rush sued him.
When this story is told to physicians today they defend Dr.
Rush saying that a practice cannot be judged in this way because it could have
been that Dr. Rush happened to get a lot of patients who were unusually sick.
Do they think
that mercury heals people? Do they think that drawing blood helps?
Today everyone knows who Jefferson and Washington were,
but no one remembers Dr. Rush. It became clear that Cobbett was right. So it was covered up.
Nothing has changed about that in 200 years.
Through the power and prestige of his position
he got patients
to pay him to make them worse
and then got richer
by suing someone for complaining
While Dr. Rush was at the Constitutional Convention helping to write
that document, Rush tried to get language written into it that
would guarantee the freedom to practice medicine in whatever way a practitioner
desired just as there was language guaranteeing the freedom to speak. He said, "Unless we put medical freedom into the Constitution, the time will come when
medicine will organize into an undercover dictatorship to restrict the art of healing to one class of man, and deny equal privileges to others. The Constitution of this Republic should make a special privilege for medical freedom as well as religious freedom."
He tried to make it illegal for the members of his profession
to band together to restrict practices they thought to be harmful.
He did not manage to do that, but with his lawsuit against
Rush he did manage to make it so
no one would monitor the outcomes of physicians. To this day no one has done
that again.
The Father of Patient Safety?
The medical community did not try to warn patients about the
antiquated practices of Rush, so a citizen did. Cobbett might have become known as
the Father of Patient Safety if medicine was not so good at
silencing patients and critics.
During the yellow fever outbreak in 1793, in which thousands
of people died and many others fled the city to escape it. Cobbett claimed that
Dr. Rush was bleeding people not because of any
scientific findings that supported the practice, but because Rush wanted to be at the helm of something great.
Rush sued Cobbett
and defeated him. It's not as though Cobbett did not have adequate legal
representation. Alexander Hamilton himself tried to protect Cobbett from legal
measures. But a jury awarded damages to Rush that so ruined Cobbett that he had to flee to England
after paying a settlement to Rush.
With all of the criticism of public figures that appeared in
Cobbett's famous gazette, it
was a physician with a lawsuit who managed to silence the voice trying to protect
the people. It is no different today. One of the first things patients usually hear after an adverse event is the rattling of the sabers of risk management
making it known that defamation suits can result from telling anyone about it.
No matter whether it is brought against the patient or brought by the patient,
and no matter who wins it, a gag order will result. The last thing they will let
to happen is for such information to get out.
Dr. Rush never managed
to convince his friend, Thomas Jefferson, that doctors do less harm than good,
but Rush did succeed in stopping we the people from talking about how to protect
ourselves from the harm that Rush was doing. To cover up the truth, Dr. Benjamin
Rush's correspondence was hidden and remained unpublished for about 200 years.
Public Health
Sixty years later in England, John Snow compiled maps and tables
similar to the ones created by William Cobbett, but instead of showing the
results of the practice of a physician, his showed that people getting water from one
water company were dying of cholera while people getting water from a different
water company were not dying. This act began the field called "Public Health"
and
John Snow now is known as the father of epidemiology. Today whole institutions are
devoted to
gathering statistics that show what is good and what is bad for public health in
the same way that John Snow did.
He could do that because he was not criticizing doctors. He
was criticizing water companies. So no one sued him. If he had criticized the
practice of a doctor or a hospital in the same way, even today, he would be sued
into silence. Patients still cannot learn the success/failure rate of doctors or
nurses or hospitals. They still cannot warn other patients about what they have
learned.
How much safer would we be if the work of William Cobbett had
made him the father Patient Safety, a field that constructs tables of patient
outcomes to show the success rate of various doctors, various treatment and
various hospitals? Patients think someone is doing that already to protect them.
Patients think that someone is making sure that incompetent operators do not
have long careers injuring patients. They are wrong.
Patients still cannot complain to each other about doctors and nurses. Doctors and nurses can
complain to each other about patients in ways that prevent patients not only from getting treatment,
but that cause injuries. Doctors literally
telephone each other and warn each other not to diagnose a patient
when that diagnosis could be used as evidence against a colleague who has injured
the
patient, even when the injuries were incurred through abuse. But patients cannot warn each other about the practitioner
who was abusive. If they do they
can get sued like William Cobbett.
Patients who have been injured find there isn't
even anyone to complain to. When they try to find someone to complain to, they find that the only
organizations that exist are ones that represent caregivers. There are none
representing patients. The stories of
Dr. James Burt and Dr. Vikas Kashyap
are not "one-offs." They are the way it works for patients.
This was something else about which Cobbett complained. He
criticized the composition of the Philadelphia board of health on the ground
that doctors composed nearly half of its members, as, sadly, is still the case
today on the boards that are supposed to regulate that profession. So there was
no one in an official position watching out for patients when Rush was using
Mercury as a medicine, just as there still is no one today watching to make sure
that physicians like Arthur Schramm do get to spend
decades operating with no one but patients knowing what he is doing. (State medical
boards curb the members of their professions only when put in a position in
which they have no other choice. They do not go out looking for problem
practitioners).
Cobbett complained that Dr. Rush's care might have been what
killed George Washington. How could journalists or anyone else search for and
share information to get to the bottom of that, or anything else that might
protect patients from someone like Rush, when physicians could sue them for doing so?
It didn't matter that they were telling the truth and had documents and
witnesses. Just defending such a suit can be ruinously expensive, and losing it
is devastating. Rush was using mercury as a medicine. And managed to persuade a
jury that he was the injured party. It is no different today when doctors and
nurses injure
patients.
So Cobbett did not get named The Father of
Patient Safety, because birth was not given to the child. We tend to
think that when the time is right advances will be made. If John Snow did not
give birth to epidemiology, surely someone else would have soon thereafter,
right? But
200 years later no one else has given birth to the field of patient safety as
Cobbett tried to do.
Without John Snow it easily could be that there still would
be no Centers for Disease Control (CDC) or National Institute of Safety and
Health (NIOSH). It easily could be that there would be no institutes of higher
education offering degrees in epidemiology. Just as, 200 years later, there
still are no institutions offering degrees in patient safety that train people
to collect data on problem practitioners. If a
radiologist is incapable of recognizing the early signs of breast cancer in an
X-ray, no one ever will know. No one is trying to protect patients the way Cobbett tried to. The government
did once try to protect patients from inept radiologists,
but medicine prevented it through lobbying.
Patients think that someone is watching out for them. They
think that someone out there must be looking for warning signs and listening to
complaints. The people who appear to be doing that are people who share the perspective and
interests of healthcare providers, not people who share the interests of patients.
That's why cases like Dr.Arthur Richard Schramm fester
for decades.
The only people who will report these things are patients,
but they get sued. Consumer Reports cannot analyze medicine the way it analyzes
hair dryers because the information is not collected and efforts to collect it
are stopped. Health care providers have a vested interest. They do not want to
be analyzed and they do not want the data collected. 98.5% of adverse events are
not reported by people in medicine (see my
Home page). And when patients
try to warn the patient community about what they experienced in medicine, they get sued.
Patients need to be able to speak without getting sued. And
they need an organization that shares their perspective when things go wrong.
They need for William Cobbett to be able to tell them about Benjamin Rush. They
need victims of adverse events in medicine to be able to get their stories heard
so that all patients can learn from them. But instead the system still
protects Benjamin Rush over patients. And the issue is not just safety. It also
is the cost of medicine. Without this kind of information, there is no way for patients
to be intelligent consumers, comparing costs versus outcomes, and thereby creating a market that drives up quality while
driving down costs.
If we do not do something about that now, it easily could be
another 200 years before anyone tries again.
If you want to say something about any of my
sites, my phone number is on almost every page. So is my
email address. There even
are Feedback Forms where you can communicate
anonymously. I am listening. I will be sensitive to what you say.